Title : "I cannot speak, walk or use my hands anymore. I am unable to move my limbs or vocalize a grunt. I communicate with my eyes..."
link : "I cannot speak, walk or use my hands anymore. I am unable to move my limbs or vocalize a grunt. I communicate with my eyes..."
"I cannot speak, walk or use my hands anymore. I am unable to move my limbs or vocalize a grunt. I communicate with my eyes..."
"... using my gaze on a specialized computer screen to write a letter at a time. I am unable to extend my neck or swallow. I drool incessantly, choking on my secretions several times a day. Deep breathing is a thing of the past. Even simple breathing is done with the help of a machine. I am a physician and a scientist and built a career studying brain diseases, and now I am living with one of the diseases that I study. I am just 40 with an amazing wife and two beautiful children.... The irony is that I had just started working on ALS when my symptoms started.... So I don’t stop. I can’t stop. I spend my days conducting research on, thinking about, living and breathing all things ALS.... A colleague recently asked why I still spend my time doing ALS research. Why not watch movies and take it easy with the time I have left?... This is what I said: I would stop doing research if my colleagues in the field could find treatments that slowed down my progression instead of just offering ways to keep my body alive.... If anyone would fight for me, I would stop doing ALS research today."From "I’m a scientist studying brain illnesses. Now I’m a lock-in, living with one of them: Lou Gehrig’s disease" by Rahul Desikan (WaPo).
ADDED: From the comments: "And a brilliant photograph speaks of the absolute love of your wife — we can only imagine what she is going through to care for you."
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